So, this is the new theme layout! I hope you all like it! :-) I like it, and find it to be much more "readable." I would've preferred Black Text, but, I couldn't find a theme layout with the right shade or light enough shade of gray, which I liked, to have the black text.
I am going to ask with the new layout, if you could all possibly take the time to just "edit" your post entries just a little...in size, that is, and only if it appears too small to read. I did check out several layouts and really did like this one best. It says that I can "edit" your entries, so, I figured that all I would do is make the "small text" larger, and nothing else, but, while it let me start that process, it wouldn't let me save the edit. The only editing it will Actually Let ME Do, seems to be to either just Delete the entry, or Delete the entry and report it as spam! Well, that's NOT my intentions here...except maybe for the one in Spanish that is so obviously spamming us about Alopecia products! But, I'm going to leave that one up for a while, just so my message to them gets to them...unless, of course, being that it was spam, they aren't coming back here, anyway.
So, I know that you all have posted many more entries than I have, but, if you wouldn't mind, and if you have the time, would you mind editing just the size of your text, if it's really tiny and hard to read? THANKS! ;-) I'm not really as concerned about the comments, as, on the comments pages the text size seems normal.
Thanks, again, and I hope that everybody is having a comfortable weekend!
By the way, I forgot to mention that, besides the Mitral-Valve Prolapse that can occur, or the Aneurysms that can occur, you can also develop Heart Murmurs due to little (we hope) holes in the Heart, due to that Faulty Collagen Protein that makes up the tissues that make up our Heart Muscles!
As I said in my earlier post, my Father had the Mitral-Valve Prolapse, and the Aortic Aneurysm in his Abdomen, near his Groin. He had the Mitral-Valve fixed or replaced, when he had a QUINTUPLET (YES, I mean 5 Arteries...the 4 Main Arteries connected to the Heart, and 1 smaller one that comes off of one of those, or something like that.) ByPass, and he also had to have a Dacron Sleeve put into that Abdominal Aorta to repair that Aneurysm. It's scary stuff, that's for sure!
I was diagnosed with a heart murmur in 7th grade, then in my Junior year of high school the same doctor said that he could no longer hear it, but, that they can sometimes heal themselves. Several years ago, my doctor told me that it was back. Lovely. I am suppose to have tests done, scans, to check to be sure that I do NOT have that same aneurysm in my abdomen, as it is hereditary from what my father's doctor told him, and it turned out that both my uncle and my grandmother had them, in the same exact location in their bodies as my father! Again, scary stuff! :-/ I'm just NOT ready to deal with it just yet, and was told that I supposedly could wait until the time that I am about 50, but, now I'm wondering, should I really wait? I'm thinking, maybe, NO!
I'm sure I also forgot to mention that the information/literature says that a lot of "female problems," or "reproductive problems," is common in the type that my daughter has, and that miscarriages are common, as I guess the tissues of the uterus or cervix stretch too much. I haven't told my daughter this yet. I'm not really looking forward to it, as, I have had 2 miscarriages that were medically diagnosed and treated...they were really bad and I was hospitalized overnight for one, and spent 6 hours or so in the ER for the other, but as I said, it was 2 that were "medically diagnosed," but I believe that there were several more! After you experience even one of them, and especially two of them, along with other pregnancies, you get to know the signs of pregnancy and the signs of miscarriage. If I didn't get sick afterward, like I did with one of the medically diagnosed ones, I didn't seek medical attention...I just got very disappointed and then very depressed. Also, my daughter was almost a miscarriage...they called it a "Threatened Abortion." I almost lost her in the 6 - 7th weeks, after passing out in the public library and hitting my head on one of the shelves. I had to stay home after that with my feet up for a week or so, as I was "spotting." That was how the first miscarriage started the spring before that. I had known something was wrong a few earlier, before I even knew by medical diagnosis that I was pregnant. I had just been put on some medication right before getting pregnant, for Narcolepsy, and had a bad reaction to it...with my liver...and had to take medication to counter that. My birth control didn't work, apparently, and a few weeks later, while at work, I started cramping really bad. I also felt "flu-ish." I left to go home to rest, but, I felt deep down that something was really WRONG! I called the doctor, made an appointment, went in, they gave me a pregnancy test, but it came out NEGATIVE! They knew that my uterus had grown a bit, and they called it " 1+ " in size. They were concerned and sent me for an ultrasound. The ultrasound showed NOTHING! They were puzzled, as they knew that there had to be a reason that my uterus had grown, but, couldn't figure out why, as of yet. I went home, depressed and scared.
My maternal grandmother had miscarriage a set of twin boys, after two successful births (my uncles), and before giving birth to my mother. After my mother, many years later, in her late 40's I think, she thought that she had miraculously gotten pregnant again. The doctor's thought that she was 5 months pregnant. They later found, in surgery, that it was actually a TUMOR the size of Large Grapefruit, which weighed almost 5 pounds!!! She had her uterus removed at that time, also!
When I was sent home with no answers, I thought for sure, after already having one miscarriage, that I was going to end up like my grandmother. I stayed in bed for 3 days, under the blankets, head and all. I didn't even want to feel the air move around me! I KNEW that something was WRONG! I didn't know if it was a result from the miscarriage, which was like 5 - 6 months earlier, fearing that maybe they didn't "remove" all of the dead "tissue," and now I was VERY SICK, or if I was having another miscarriage, but it wasn't showing up as a pregnancy because of medications, or the fact that it was still so small. I just KNEW something was very wrong! A few days later, I received a letter in the mail...I had lost my job! Apparently, during all of this, while I had my head stuck under the covers, wallowing in my own self-pity and fears, I forgot to call work, AGAIN, and the fact that I told them that I was sick a few days earlier was not enough. I had to call EVERY DAY! (I do get it now, but, at the time, I guess it wasn't my priorty.) A day after I received the letter, I had a follow up with my doctor, and he did another pregnancy test. HA! Turns out... I WAS PREGNANT, AFTER ALL! They figured about 3 - 4 weeks along. A couple of days later, I went to the library, passed out, and in the emergency room they tested me again, did an ultrasound, (the EMTs thought I was hallucinating or something, when I started to wake up and told them that I was pregnant) and they said that I was actually 6 - 7 weeks pregnant. I asked why it had not shown up the week before, and they figured it was the meds I was on. That's when I was told to stay home with my feet up for a week.
Now I was pregnant, single (well, he was immature and non-commital...he couldn't stay faithful, and I couldn't handle that.) and without a job.
Anyway, besides the miscarriages being one of the effects of EDS, I have also had A LOT of problems with Horribly Painful, Heavy Periods, which sometimes actually make it impossible for me even stay standing up for more than a minute or so! The pain is not just in my lower pelvic/abdominal region, but, also in my upper abdominal region, and my hips, and thighs all the way down to my knees, and sometimes on one side all the way down to my foot. Supposedly, this is from the cramping muscles, which are attached to other things, pulling from all directions!
Like I said, I haven't told my daughter this part yet, and I fear what she has in store for her, reproductively! It makes me sad to think about it, really, as the literature says that EDS can sometimes make carrying out pregnancies successfully, very difficult, and even impossible! I've never had a problem GETTING PREGNANT, only "MAINTAINING THE PREGNANCIES" TO FULL TERM! Yes, I'm fearful for her...I feel very bad...I feel like, somehow, it's MY FAULT!...My Genes...you know.